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Young onset dementia support

Young-onset dementia refers to dementia that is diagnosed in people under the age of 65. It is estimated that there are more than 42,000 people living with young-onset dementia in the UK.

It is also known as early-onset and working-age dementia.

In Berkshire, there are a number of services that specifically support people with young-onset dementia and their family and friends.

Young People with Dementia (YPWD) charity

YPWD provides support for people with young-onset dementia and their family and carers. This includes activities and workshops which are risk-positive and age appropriate. They also provide carer support groups and social activities for families throughout the year.

Visit the YPWD website (opens new browser tab)

Call 0118 207 2880 

Young-onset Dementia Advisers

Young Onset Dementia Advisers offer a specialised information and advice service.

Dementia Advisers can offer advice on various aspects of living with dementia such as planning for the future, financial benefits, activities and events, signposting to further support.

Call Berkshire West Young Onset Dementia Adviser 01189 495 101

Call Bracknell Forest Young Onset Dementia Adviser 01189 046 900

Call Slough Dementia Adviser 01753 635 210                                                     

Call Windsor and Maidenhead Young Onset Dementia Adviser 01628 683 715 

Admiral Nurse

The Admiral Nurse provides emotional and/or practical support to family members/carers of people with young onset dementia. The Admiral Nurse can also provide advice and consultancy to fellow professionals and carers and are also involved in education programmes for carers

Visit the YPWD website to contact admiral nurses (opens new browser tab) 

Understanding young-onset Dementia Education Course

Together with partner organisations, we host regular understanding young-onset dementia education courses, for people diagnosed with dementia and their family and friends. These events also provide an opportunity to meet with others in similar situations.

Contact our team to find out more, and register.

Call 0118 207 2880

You can find more information online.

Visit Dementia UK website for information about Young Onset Dementia (opens new browser tab)

Visit the Alzheimer’s Society website (opens new browser tab)