Advice and resources : Request for Help process guidance for professionals
Overview
Please read this information if you are wondering if a child or young person may benefit from an assessment for autism and/or ADHD. Please look through the information below, in order. This will guide you through the best way to help the child or young person.
Thinking About Possible Autism Or Adhd Leaflet
File size: 287KB
Who can we offer an assessment to?
ADHD
- We can offer ADHD assessments for children and young people aged 6–17 years.
- We do not offer assessments for children under 6.
- For young people aged 18 and above, please visit our Adult ADHD service.
- We can consider medication for children and young people who already have a diagnosis of ADHD.
- If the young person already has a diagnosis of ADHD and already takes medication and you are asking us to take over their care: please fill in the additional information document found here and attach it with the online referral form.
- The child or young person must be registered with a GP in Berkshire.
Autism
- We can offer autism assessments for children/young people aged 2 ½ to 17 ½ years of age.
- For requests to consider autism assessment for young people aged 17 ½ years or older: please visit our adult autism assessment team.
- The child or young person must be registered with a GP in Berkshire.
Supporting the child or young person straight away
The most important thing is to put support in place straight away – this can happen without diagnosis, assessment or referral.
Begin by putting in place a support plan, and advise families what support they can access straight away. As part of the support plan, think about the child or young person’s needs at home as well as a school. Remember that the child may present very differently: for some children and young people their distress may only really be apparent at home. Some changes in school could make life much less stressful for the young person. For some children and young people this support plan may be sufficient to address the concerns.
There are many things that might look like possible autism or ADHD but are not. This can include things like hearing, speech and language difficulties, learning difficulties, depression and anxiety, bullying and emotional worries. It’s important, therefore, to carefully consider these possibilities before thinking about requesting an autism/ADHD assessment.
What help is available now?
In Berkshire, we are fortunate that in many or most cases you can get exactly the same support without an assessment (or referral) as you would get after a diagnosis. This means the child or young person can receive support as early as possible based on their needs, without needing to rely on or wait for an assessment to happen first.
A young person’s needs will be the same on the day after the assessment as they were the day before the assessment. It is very likely that the child or young person will still require support whether or not they receive a formal diagnosis. So having the right support in place as early as possible is more important and more meaningful than being added to a long waiting list.
There is a range of support available immediately which can often mean a young person does not need an assessment.
Visit the below pages to advise families about all the support available now:
There are lots of strategies that parents and carers can put in place to help a child or young person, which you can find here:
Putting a support plan in place
Support plans can take different forms. They should be based on a careful consideration of individual needs and helpful strategies, with a plan to review and adapt the plan as needed. Often relatively small changes can make a big difference. Flexibility is key when thinking about how to make adaptations to support the child or young person.
Support plans should:
- Focus on tailored support based on the identified challenges/needs/difficulties, while also factoring in strengths and what the child or young person enjoys.
- Consider the reasonable adjustments that the school can make to support the child or young person and the ways that the environment can be adapted (eg considering sensory differences/sensitivities).
- Identify and provide support for aspects of the school day that might cause stress or distress for the young person, even when this is not directly observed in school.
- Include the less structured parts of the school day (break, lunch and after school clubs or activities).
As part of the support plan, please make sure that families also know where they can access advice, support and courses.
If school have access to a profiling tool, this will be extremely helpful in understanding the profile of needs and strengths and informing strategies to support the child or young person.
Please see the checklists below for help in putting a support plan in place. You can also find more information on strategies for supporting attention, activity, emotions and behaviour and strategies for supporting communication, sensory needs, emotions and behaviour.
Checklist
Possible ADHD support plan checklist: Primary school
Regular movement breaks and/or ‘brain breaks’
Adjust seating plan, for example sitting near the teacher/away from distractions
Use of fidget toys
Give regular prompts and reminders
Adapt instructions – short and specific, written instructions, repeat as needed
Break work down into small chunks
Give regular positive encouragement
Allow use of noise cancelling headphones or earphones if desired
Give opportunities to stand up or walk around classroom in a non-disruptive way for example giving out books/sharpening pencils
If possible do not remove breaks as a punishment or way to make up for missed work
Use of a system such as zones of regulation or the traffic light system
Allow extra time to complete work or process information
Frequent check-ins or 1:1 mentoring/keyworker
Access to a quiet space when needed
Regular and effective home-school communication e.g. communication book or weekly communication sheet
Ignore minor behaviour if possible, especially if it seems unintentional (eg shouting out) or is unlikely to reoccur
Offer a break or redirection if they appear dysregulated
Possible ADHD support plan checklist: Secondary school
Regular movement breaks and/or ‘brain breaks’ eg by providing time out card
Adjust seating plan, for example sitting near the teacher/away from distractions
Use of fidget toys
Give regular prompts and reminders
Adapt instructions – short and specific, written instructions, repeat as needed
Break work down into small chunks
Give regular positive encouragement
Allow use of noise cancelling headphones or earphones if desired
If possible do not remove breaks as a punishment or way to make up for missed work
Allow extra time to complete work or process information
Frequent check-ins or 1:1 mentoring/keyworker
Identify safe person for them to talk to/go to when needed
Access to a quiet space when needed
Provide spare equipment if forgotten rather than issuing detentions
Regular and effective home-school communication e.g. identified member of staff to liaise with parent on a regular basis
Ignore minor behaviour if possible, especially if it seems unintentional (eg shouting out) or is unlikely to reoccur
Provide copies of notes rather than expecting them to copy notes from the board in a limited time
Possible autism support plan checklist: primary school
Access to a quiet space when needed
Use of noise cancelling earphones or ear defenders if desired
Adjustments to uniform to meet sensory needs
Flexibility to seating plan, for example child may wish to be seated near the door or the teacher, or away from distractions
Give advance notice of any changes where possible
Use of visual timetable so they can understand the plan for the day
Regular 1:1 time with a keyworker or mentor, or when they appear frustrated or struggling
Use of fidget toys for sensory seeking needs
Adapt instructions – short and specific, written instructions, repeat as needed
Break work down into small chunks
Flexibility around group work
Provide a safe quiet space to utilise at break or lunchtime
Allow extra time to complete work or process information
Flexibility around homework when child struggles with home/school separation
Regular and effective home-school communication eg communication book or weekly communication sheet
Use of a system such as zones of regulation or the traffic light system
Offer a break or redirection if they appear dysregulated
Support for coping with emotions such as ELSA
Use of visual aids to support understanding of expectations, boundaries, daily activities etc
Identify child’s specific triggers and strategies to limit these (eg adjustments around assemblies, PE, off timetable days such as sports days)
Possible autism support plan checklist: Secondary school
Provide a ‘time out’ card to leave classroom when needed
Access to a quiet space at break or lunchtimes
Use of noise cancelling earphones or ear defenders if desired
Adjustments to uniform to meet sensory needs
Flexibility to seating plan, for example young person may wish to be seated near the door or the teacher, or away from distractions
Give advance notice of any changes where possible
Regular 1:1 time with a keyworker or mentor
Identify a safe person for them to talk to/go to when needed
Use of fidget toys for sensory seeking needs
Adapt instructions – short and specific, written instructions, repeat as needed
Break work down into small chunks
Flexibility around group work
Allow extra time to complete work or process information
Flexibility around homework when child struggles with home/school separation
Regular and effective home-school communication eg identified member of staff to liaise with parent on a regular basis
Offer a break or redirection if they appear dysregulated
Support for coping with emotions such as ELSA or counselling
Identify young person’s specific triggers and strategies to limit these (eg adjustments around assemblies, PE, off timetable days such as sports day)
Checklist for autism assessment (aged 2 years 6 months - 4 years 11 months)
Checklist
All of the below need to apply
Child is aged 2 years 6 months to 4 years 11 months and registered with a Berkshire GP
Child presents with features highly suggestive of autism
Social communication differences are clearly out of line with overall developmental level
Concerns/differences have been present for six months or longer
Concerns/differences are seen across different settings
There is clear and informed consent from parents or carers
Appropriate developmental checks have been carried out with the Health Visiting team, a support plan has been put in place and implemented
Parents or carers have accessed support/training from the relevant autism support service and implemented recommendations at home.
Where they apply, the below are also needed.
If the child is in an early years/educational setting: a SENCO-led support plan needs to have been in place and fully implemented for at least six months/two terms (eg a minimum of two ‘assess, plan, do, review’ cycles)
If there are concerns regarding the child’s speech and language development (eg language delay): support/advice needs to have been sought from the Speech & Language Therapy service.
This can be accessed by calling their Early Years enquiries line on 0118 9043700 between 9am-3.30pm on Tuesdays and Thursdays.
If there are behavioural/emotional concerns: advice has been sought from Health Visiting Team and support/recommendations have been implemented for at least six months
If supported by the development officers/early years team/educational psychologist: all support/recommendations must have been implemented and evaluated for at least six months
Vision and hearing checks have been carried out where these are needed
Checklist for autism assessment (aged 5-17 1/2 years)
Checklist
All of the below need to apply
Child/young person is aged 5 years to 17 years 5 months and registered with a Berkshire GP
Child/young person presents with features highly suggestive of autism
If child/young person has a learning disability, social communication differences are clearly out of line with overall developmental level
Concerns/differences have been present since early childhood
Concerns/differences are seen across different settings
There is clear and informed consent from parents or carers or the young person themselves if over 14 years of age (where appropriate)
Parents/carers have accessed support/training from the relevant autism support service and implemented recommendations at home.
Where they apply, the below are also needed
If the child or young person is in an educational setting: a SENCO-led support plan needs to have been in place, fully implemented and reviewed for at least six months/two terms (eg a minimum of two ‘assess, plan, do, review’ cycles)
If there are concerns regarding the child or young person’s cognitive ability or ability to access the curriculum: advice needs to be sought from the educational psychologist via the school SENCO (NB this is advice only and may or may not result in direct input)
If seen by an educational psychologist: all support/recommendations must have been implemented and evaluated for at least six months
If there are concerns regarding the child or young person’s speech and language development (eg language delay): support/advice needs to have been sought from the Speech & Language Therapy service.
If the child or young person has a moderate/severe learning disability and there are significant concerns regarding mental health and/or behaviours that challenge/behaviours of distress: consultation with or referral to the CAMHS Learning Disability Team needs to have taken place (consultation will include advice as to whether a referral to CAMHS LD should be made).
Tel: 0118 9046660
Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are significant concerns about the child or young person’s mental health: the young person and/or family must have been referred for or accessed support. The best way to support will depend on the type of concerns.
Checklist for ADHD assessment (aged 6-17 years)
Checklist
All of the below need to apply
Child or young person is aged 6-17 and registered with a Berkshire GP
Child or young person presents with symptoms highly suggestive of ADHD
If child or young person has a learning disability: concentration, activity levels & impulsivity are clearly out of line with overall developmental level
Symptoms have been present since before the age of 12 and lasted six months or longer
Symptoms are seen across at least two different settings
The difficulties have a significant impact on the young person
There is clear and informed consent from parents/carers or the young person themselves if over 14 years of age (where appropriate)
The young person does not have current and significant drug issues due to the potential risks. We recommend substance misuse is supported and addressed first.
Parents/carers have accessed support/training from the relevant ADHD support service and implemented recommendations at home.
Where they apply, the below are also needed
If the child or young person is in an educational setting: a SENCO-led support plan needs to have been in place and fully implemented for at least six months/two (eg a minimum of two ‘assess, plan, do, review’ cycles)
If there are concerns regarding the child/young person’s cognitive ability or ability to access the curriculum: advice needs to be sought from the educational psychologist via the school SENCO (NB this is advice only and may or may not result in direct input)
If seen by an educational psychologist: all support/recommendations must have been implemented and evaluated for at least six months
If the child or young person has a moderate/severe learning disability and there are significant concerns regarding mental health and/or behaviours that challenge/behaviour of distress: consultation with or referral to the CAMHS Learning Disability Team needs to have taken place (consultation will include advice as to whether a referral to CAMHS Learning Disability Team should be made).
Tel: 0118 9046660 Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are significant concerns about the child or young person’s mental health: the young person and/or family must have been referred for or accessed support. The best way to support will depend on the type of concerns
Checklist for request to consider starting ADHD medication (aged 6-17 years)
Checklist
This is for a request to consider starting ADHD medication when an ADHD diagnosis has already been made.
All of the below need to apply
Child or young person is aged 6 to 17 years old and registered with a Berkshire GP
The difficulties have a significant impact on the child or young person
There is clear and informed consent from parents/carers or the young person themselves if over 14 years of age (where appropriate)
The young person does not have current and significant drug issues due to the potential risks. We recommend substance misuse is supported and addressed first.
Parents/carers have accessed support/training from the relevant ADHD support service and implemented recommendations at home.
For further information about support, please click on this link: https://www.parentingspecialchildren.co.uk/courses/adhd-courses-and-workshops-for-parentscarers/ on behalf of Gems (East Berkshire) & Autism Berkshire (West Berkshire)
Where they apply, the below are also needed
If the child or young person is in an educational setting: a SENCO-led support plan needs to have been in place and fully implemented for at least six months/two (eg a minimum of two ‘assess, plan, do, review’ cycles)
If there are concerns regarding the child or young person’s cognitive ability or ability to access the curriculum: advice needs to be sought from the educational psychologist via the school SENCO (NB this is advice only and may or may not result in direct input)
If seen by an educational psychologist: all support/recommendations must have been implemented and evaluated for at least six months
If the child or young person has a moderate/severe learning disability and there are significant concerns regarding mental health and/or behaviours that challenge/behaviour of distress: consultation with or referral to the CAMHS Learning Disability Team needs to have taken place (consultation will include advice as to whether a referral to CAMHS Learning Disability Team should be made).
Tel: 0118 9046660 Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are significant concerns about the child or young person’s mental health: the young person and/or family must have been referred for or accessed support. The best way to support will depend on the type of concerns
If you still feel an assessment would help
If, after following all of this advice and following the support plan for at least six months, you and the family still feel an assessment would help, we ask you to work with the family to complete the appropriate additional information document together, then submit it with the online referral form. Making referrals jointly with the family helps us get a better understanding of the child or young person’s needs, and means we can process the referral as quickly as possible.
Referrals should be made only after a robust support plan has been put in place and reviewed for at least six months or two school terms.
What to do now
Please note you will not be able to submit the online referral form unless you have the completed and attached the additional information document.
The information will be reviewed and a decision made about the best way to help the child or young person. Because of the number of referrals we receive, this can take some time and we please ask for your patience.
As soon as the review (known as triage) is complete, we'll reach out to share our decision with you. To help our team focus on reviewing all requests, we kindly ask that you refrain from calling the service for updates. Thank you for your understanding and patience.
Frequently asked questions
What about parents and carers that cannot access or use online systems?
Working in partnership with the school (or other involved professional) means that they can support the use of IT systems. Where there is no one available to support the young person, bespoke support can be provided by the service.
What if the school or professional is concerned, but the family is not?
Arrange to meet the parent/carer and explain your concern. Discuss with them how the school can support the child and what support is available to the family. Make sure an effective support plan is in place (this should be based on identified need and does not require referral/assessment/diagnosis). Arrange to meet regularly to evaluate the child's progress.
If you feel the child needs a specific provision or service that can ONLY be accessed with a specific diagnosis, please share this with the family.
The child/young person presents very differently at school and at home, what guidance can you offer?
This can often happen and it may be for a number of different reasons. A young person may work very hard to manage the school day, although this may not be apparent in the school setting. This may only be seen at home where the young person may, for example, have meltdowns or shutdowns. The effort to manage the school day can leave young people exhausted and with no energy or coping resources left by the time they get home. This can particularly affect young people who mask or camouflage, and work very hard to fit in.
While the distress may only be seen at home, the underlying triggers or reasons are often things that happen at school. It is very important to understand that, although a child may appear to cope at school, they may be feeling very stressed and distressed, even if they do not show this at school. Talking to the young person and their family will usually provide important information about sources of stress at school and ideas about what support can be put in place to reduce this.
What if the child or young person is on the school roll but is not currently attending due to anxiety or other needs?
If there is someone in school that knows the child or young person, we still ask them to work with the family as they will have important information including why the young person is not in the school setting. Where a child or young person is not known to school staff, then generally another professional who has direct knowledge of the young person will partner with the family.
Why do we need to wait six months before deciding whether a referral is needed?
Six months will give enough time to implement and evaluate a robust support plan based on the child or young person ’s needs. Some children or young people may not need a formal assessment after this, as their needs will now have been met.
We ask you to work in partnership with the parents and carers. Information needs to be gathered by looking back over a minimum period of two terms or six months. This is so we can fully understand the child/young person’s needs, the strategies put in place and the impact these strategies have had. This is referred to as a ‘graduated response’ to meet a child/young person’s needs.
Will the requirements for a support plan put additional pressures on school staff?
The updates to the process are intended to reflect the graduated response and ordinarily available provision and what is already happening in schools. Our assumption is that where there are concerns sufficient enough to warrant referral for a specialist assessment, these will also be triggering a support plan in school.
All children/young people will need a fully completed form and supporting evidence before we can accept for assessment as it is the only way to gather the depth of information required. We cannot properly triage the referral and make decisions we have all the information required.
Will completing the additional information form create additional work for schools?
We would like to reassure you that the additional information forms have been designed to reduce the burden for those completing them when compared to the previous process. For example the combined autism and ADHD form replaces a total of 9 separate questionnaires previously sent out to families and schools. The forms have been designed to streamline the process, reduce duplication and the reliance on referrers providing a great deal of narrative text or description. Very similar additional information forms have been in place in Oxford for over a year and in Buckinghamshire for several months and are working well.
By making the forms available to download and asking for the form and support plan to be uploaded with the referral form, we are eliminating delays and issues with sending and receiving documentation that has held the process up for many families. We are already seeing that triage under the updated process is taking much less time to complete.
Can I give feedback on the process?
Yes, we will collect feedback from families and schools with every referral to help us evaluate, refine and improve the process. We want to make sure the system adapts to meet the needs of children and young people effectively.
What do we mean by a support plan?
This is the support in place that is above and beyond what would be typical to support a child/young person at this stage of development. A support plan is expected to include areas of need we would typically associate with possible autism and/or possible ADHD. For example for possible autism this would include needs with communication and social interaction, flexibility of thought and behaviour and sensory needs (three key areas of difference).
When completing a referral we ask for you to demonstrate that a ‘graduated response’ has been put in place for at least six months or two terms prior to referral. This includes any support that has been offered at home, in school or by other services involved. It can include strategies that parents have introduced at home as well as strategies recommended or put in place by professionals.
Why do we think a support plan is so important?
When we look at the process overall (in terms of referrals that are not accepted and referrals for children who do not go on to get a diagnosis) it is clear that there are children and young people whose needs can be met without referral for a specialist assessment. It is also very important that we do not add children to a long waiting list without knowing that they have support in place. For ADHD we have always asked that support is in place first (previously for 10 weeks) and a copy of the school support plan is provided.
What if the referral process isn't clear for some families or schools?
We are providing detailed guidance on our website and will be available to answer any questions. We encourage families and schools to spend some time on the website reviewing all of the information as this is likely to answer their questions. If not they can contact us for advice.
CYP Autism and ADHD triage team
CYPADHDandAutismTriage@berkshire.nhs.uk
0118 9046620
What support is available for schools?
There is a range of resources and free training to help schools with supporting children and young people. This includes:
- Psychological Perspectives in Education and Primary Care or PPEPCare Training: Flexible and free training for EYS/schools delivered by Berkshire Healthcare, with a total of 17 modules covering autism, ADHD and a wide range of common concerns and mental health difficulties
- NHSE info re Children and Young People including PINS: A national pilot coordinated by the Department for Education, Department of Health and Social Care, NHS England. Currently in primary schools in Reading, Bracknell, Royal Borough of Windsor and Maidenhead. The pilot will focus on early support and intervention for neurodivergent children in the mainstream primary setting. It will achieve this by bringing together health, the local parent carer forum, the local authority, and education staff to help shape whole school SEND provision , provide early interventions at a school level , upskill school staff, and support strengthening of partnerships between schools and parent carers.
- Belonging in School A guide to developing an inclusion policy for schools
- Person Centred profiling tool from Bracknell Forest
Helpful resources
Thinking About Possible Autism Or Adhd Leaflet
File size: 287KB

