Advice and resources : Request for Help process guidance for professionals
Overview
Please read this information if you are wondering if a child or young person may benefit from an assessment for autism and/or ADHD. Please look through the information below, in order. This will guide you through the best way to help the child or young person.
Thinking about possible autism or ADHD
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Who can we offer an assessment to?
ADHD
- We can offer ADHD assessments for children and young people aged 6–17 years.
- We do not offer assessments for children under 6.
- For young people aged 18 and above, please visit our Adult ADHD Service.
- We can consider medication for children and young people who already have a diagnosis of ADHD.
- If the young person already has a diagnosis of ADHD and already takes medication, and you are asking us to take over their care, please fill in the additional information document and attach it with the online referral form.
- The child or young person must be registered with a GP in Berkshire.
Autism
- We offer autism assessments for children and young people aged 2 years 6 months to 17 years 6 months.
- For requests to consider autism assessment for young people over the age of 17 years 6 months, please visit our Adult Autism Assessment Service.
- The child or young person must be registered with a GP in Berkshire.
Supporting the child or young person straight away
The most important thing is to put support in place straight away – this can happen without diagnosis, assessment, or referral.
Begin by putting in place a support plan, and advise families what support they can access straight away. As part of the support plan, think about the child or young person’s needs at home as well as a school.
Remember that the child may present very differently. For some children and young people, their distress may only really be apparent at home. Some changes in school could make life much less stressful for the young person. For some children and young people, this support plan may be enough to address the concerns.
There are many things that might look like possible autism or ADHD, but are not. This can include things like a hearing problem, speech and language difficulties, learning difficulties, depression and anxiety, bullying, and emotional worries. It’s important, therefore, to carefully consider these possibilities before thinking about requesting an autism or ADHD assessment.
What help is available now?
In Berkshire, we are fortunate that in many or most cases you can get exactly the same support without an assessment (or referral) as you would get after a diagnosis. This means the child or young person can receive support as early as possible based on their needs, without needing to rely on or wait for an assessment to happen first.
A young person’s needs will be the same on the day after the assessment as they were the day before the assessment. It is very likely that the child or young person will still require support, whether or not they receive a formal diagnosis. So having the right support in place as early as possible is more important and more meaningful than being added to a long waiting list.
There is a range of support available immediately which can often mean a young person does not need an assessment.
Visit the below pages to advise families about all the support available now:
There are lots of strategies that parents and carers can put in place to help a child or young person, which you can find here:
Putting a support plan in place
Support plans can take different forms. They should be based on a careful consideration of individual needs and helpful strategies, with a plan to review and adapt the plan as needed. Often, relatively small changes can make a big difference. Flexibility is key when thinking about how to make adaptations to support the child or young person.
Support plans should:
- focus on tailored support based on the identified challenges, needs, or difficulties, while also factoring in strengths and what the child or young person enjoys
- consider the reasonable adjustments that the school can make to support the child or young person and the ways that the environment can be adapted (for example, considering sensory differences or sensitivities)
- identify and provide support for aspects of the school day that might cause stress or distress for the young person, even when this is not directly observed in school
- include the less structured parts of the school day (break, lunch, and after-school clubs or activities)
As part of the support plan, please make sure that families also know where they can access advice, support, and courses.
If the school has access to a profiling tool, this will be extremely helpful in understanding the profile of needs and strengths and informing strategies to support the child or young person.
Please see the checklists below for help in putting a support plan in place.
You can also find more information on strategies for supporting:
Checklist
Possible ADHD support plan checklist: Primary school
- Regular movement breaks and/or ‘brain breaks’
- Adjust seating plan, for example sitting near the teacher/away from distractions
- Use of fidget toys
- Give regular prompts and reminders
- Adapt instructions so they are short and specific, written down, and repeated as needed
- Break work down into small chunks
- Give regular positive encouragement
- Allow use of noise-cancelling earplugs or ear defenders, if desired
- Give opportunities to stand up or walk around classroom in a non-disruptive way, such as giving out books or sharpening pencils
- If possible, do not remove breaks as a punishment or a way to make up for missed work
- Use a system such as 'zones of regulation' or the traffic light system
- Allow extra time to complete work or process information
- Frequent check-ins or one-to-one mentoring or keyworker
- Access to a quiet space when needed
- Regular and effective home-school communication aided by a communication book or weekly communication sheet
- Ignore minor behaviour if possible, especially if it seems unintentional (for example, shouting out) or is unlikely to reoccur
- Offer a break or redirection if they appear dysregulated
Possible ADHD support plan checklist: Secondary school
- Regular movement breaks and/or ‘brain breaks’ supported by a time-out card
- Adjust the seating plan so that they are, for example, sitting near the teacher and/or away from distractions
- Use of fidget toys
- Give regular prompts and reminders
- Adapt instructions so they are short and specific, written down, and repeated as needed
- Break work down into small chunks
- Give regular positive encouragement
- Allow use of noise-cancelling earplugs or ear defenders, if desired
- If possible, do not remove breaks as a punishment or way to make up for missed work
- Allow extra time to complete work or process information
- Frequent check-ins or one-to-one mentoring or keyworker
- Identify safe person for them to talk to/go to when needed
- Access to a quiet space when needed
- Provide spare equipment if forgotten, rather than issuing detentions
- Regular and effective home-school communication, such as an identified member of staff speaking with a parent on a regular basis
- Ignore minor behaviour if possible, especially if it seems unintentional (for example, shouting out) or is unlikely to reoccur
- Provide copies of notes rather than expecting them to copy notes from the board in a limited time
Possible autism support plan checklist: Primary school
- Access to a quiet space when needed
- Use of noise-cancelling earplugs or ear defenders, if desired
- Adjustments to uniform to meet sensory needs
- Flexibility to seating plan, for example child may wish to be seated near the door or the teacher, or away from distractions
- Give advance notice of any changes, where possible
- Use of visual timetable so they can understand the plan for the day
- Regular one-to-one time with a keyworker or mentor, or when they appear frustrated or struggling
- Use of fidget toys for sensory seeking needs
- Adapt instructions so they are short and specific, written down, and repeated as needed
- Break work down into small chunks
- Flexibility around group work
- Provide a safe, quiet space to for breaks or lunchtime
- Allow extra time to complete work or process information
- Flexibility around homework when child struggles with home-school separation
- Regular and effective home-school communication aided by a communication book or weekly communication sheet
- Use a system such as 'zones of regulation' or the traffic light system
- Offer a break or redirection if they appear dysregulated
- Support for coping with emotions, such as ELSA
- Use visual aids to support understanding of expectations, boundaries, daily activities, and other issues
- Identify child’s specific triggers and strategies to limit these, such as adjustments around assemblies, PE, and off-timetable days like sports day
Possible autism support plan checklist: Secondary school
- Provide a ‘time out’ card to leave classroom when needed
- Access to a quiet space at break or lunchtimes
- Use of noise-cancelling earplugs or ear defenders, if desired
- Adjustments to uniform to meet sensory needs
- Flexibility to seating plan, for example young person may wish to be seated near the door or the teacher, or away from distractions
- Give advance notice of any changes where possible
- Regular one-to-one time with a keyworker or mentor
- Identify a safe person for them to talk to/go to when needed
- Use of fidget toys for sensory seeking needs
- Adapt instruction so they are short and specific, written down, and repeat as needed
- Break work down into small chunks
- Flexibility around group work
- Allow extra time to complete work or process information
- Flexibility around homework when child struggles with home-school separation
- Regular and effective home-school communication, such as conversations between an identified member and parent on a regular basis
- Offer a break or redirection if they appear dysregulated
- Support for coping with emotions, such as ELSA or counselling
- Identify young person’s specific triggers and strategies to limit these (for example, adjustments around assemblies, PE, and off-timetable days, such as sports day)
Checklist for autism assessment (aged 2 years 6 months - 4 years 11 months)
Checklist
All of the below need to apply
- Child is aged 2 years 6 months to 4 years 11 months and registered with a Berkshire GP
- Child presents with features highly suggestive of autism
- Social communication differences are clearly out of line with overall developmental level
- Concerns or differences have been present for six months or longer
- Concerns or differences are seen across different settings
- There is clear and informed consent from parents or carers
- Appropriate developmental checks have been carried out with the Health Visiting Service, a support plan has been put in place, and it has been followed
- Parents or carers have accessed support or training from the relevant autism support service and implemented recommendations at home
Where they apply, the below are also needed.
If the child is in an early years or educational setting, a SENCO-led support plan needs to have been in place and followed for at least six months or two terms (a minimum of two ‘assess, plan, do, review’ cycles).
If there are concerns regarding the child’s speech and language development (for example, language delay), support and advice from the Speech and Language Therapy Service needs to have been followed. This can be accessed by calling their Early Years enquiries line on 0118 904 3700 between 9am–3.30pm on Tuesdays and Thursdays.
If there are behavioural or emotional concerns, advice needs to have been requested from the Health Visiting Service and support and recommendations in place for at least six months.
If supported by the development officers, early years team, and/or educational psychologist, all support and recommendations must have been followed and evaluated for at least six months.
Vision and hearing checks must have been carried out where these are needed.
Checklist for autism assessment (aged 5-17 1/2 years)
Checklist
All of the below need to apply
- Child or young person is aged 5 years to 17 years 5 months and is registered with a Berkshire GP
- Child or young person presents with features highly suggestive of autism
- If child or young person has a learning disability, social communication differences are clearly out of line with overall developmental level
- Concerns or differences have been present since early childhood
- Concerns or differences are seen across different settings
- There is clear and informed consent from parents or carers, or the young person themselves if over 14 years of age (where appropriate)
- Parents/carers have accessed support and/or training from the relevant autism support service and followed recommendations at home
Where they apply, the below are also needed
If the child or young person is in an educational setting, a SENCO-led support plan needs to have been in place, followed, and reviewed for at least six months or two terms (a minimum of two ‘assess, plan, do, review’ cycles).
If there are concerns regarding the child or young person’s cognitive ability, or ability to access the curriculum, advice will be needed from an educational psychologist via the school SENCO (note that this is advice only and may or may not result in direct input).
If seen by an educational psychologist, all support and recommendations must have been followed and evaluated for at least six months.
If there are concerns regarding the child or young person’s speech and language development (for example, language delay), support and advice from the Speech and Language Therapy Service needs to have been followed.
If the child or young person has a moderate or severe learning disability, and there are significant concerns regarding mental health and/or behaviours that challenge/behaviours of distress, a consultation with, or referral to, the Learning Disability Service (often known as CAMHS LD) needs to have taken place.
Tel: 0118 904 6660
Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are significant concerns about the child or young person’s mental health, the young person and/or family must have been referred for or accessed support. The best way to support will depend on the type of concerns.
Checklist for ADHD assessment (aged 6-17 years)
Checklist
All of the below need to apply
- Child or young person is aged 6-17 and is registered with a Berkshire GP
- Child or young person presents with symptoms highly suggestive of ADHD
- If child or young person has a learning disability, concentration, activity levels, and impulsivity are clearly out of line with overall developmental level
- Symptoms have been present since before the age of 12 and have lasted six months or longer
- Symptoms are seen across at least two different settings
- The difficulties have a significant impact on the young person
- There is clear and informed consent from parents/carers, or the young person themselves if over 14 years of age (where appropriate)
- The young person does not have current and significant drug issues. Due to the potential risks, we recommend substance misuse is supported and addressed first.
- Parents/carers have accessed support and/or training from the relevant ADHD support service and implemented recommendations at home.
Where they apply, the below are also needed
If the child or young person is in an educational setting, a SENCO-led support plan needs to have been in place and fully implemented for at least six months or two terms (a minimum of two ‘assess, plan, do, review’ cycles).
If there are concerns regarding the child or young person’s cognitive ability, or ability to access the curriculum, advice will be needed from an educational psychologist via the school SENCO (note that this is advice only and may or may not result in direct input).
If seen by an educational psychologist, all support and recommendations must have been followed and evaluated for at least six months.
If the child or young person has a moderate or severe learning disability and there are significant concerns regarding mental health and/or behaviours that challenge/behaviour of distress: consultation with or referral to the Learning Disability Service (often known as CAMHS LD) needs to have taken place. A consultation will include advice about whether a referral to CAMHS LD should be made.
Tel: 0118 904 6660
Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are serious concerns about the child or young person’s mental health, the young person and/or family must have been referred for or accessed support. The best way to support will depend on the type of concerns.
Checklist for request to consider starting ADHD medication (aged 6-17 years)
Checklist
This is for a request to consider starting ADHD medication when an ADHD diagnosis has already been made.
All of the below need to apply
- Child or young person is aged 6 to 17 years old and registered with a Berkshire GP
- The difficulties have a significant impact on the child or young person
- There is clear and informed consent from parents/carers, or the young person themselves if over 14 years of age (where appropriate)
- The young person does not have current and significant drug issues. Due to the potential risks, we recommend substance misuse is supported and addressed first.
- Parents/carers have accessed support and/or training from the relevant ADHD support service and put in place recommendations at home.
For further information about support:
Where they apply, the below are also needed
If the child or young person is in an educational setting, a SENCO-led support plan needs to have been in place and followed for at least six months or two terms (a minimum of two ‘assess, plan, do, review’ cycles).
If there are concerns regarding the child or young person’s cognitive ability, or ability to access the curriculum, advice will be needed from an educational psychologist via the school SENCO (note that this is advice only and may or may not result in direct input).
If seen by an educational psychologist, all support and recommendations must have been followed and evaluated for at least six months
If the child or young person has a moderate/severe learning disability and there are significant concerns regarding mental health and/or behaviours that challenge or behaviour of distress, a consultation with, or referral to, the Learning Disability Service (often known as CAMHS LD) needs to have taken place. A consultation will include advice about whether a referral to CAMHS LD should be made.
Tel: 0118 904 6660
Email: CAMHSLearningDisabilityTeam@berkshire.nhs.uk
If there are significant concerns about the child or young person’s mental health, the young person and/or family must have been referred for or accessed support. The best way to support will depend on the types of concerns.
If you still feel an assessment would help
If, after following all of this advice and following the support plan for at least six months, you and the family still feel an assessment would help, we ask you to work with the family to complete the appropriate additional information document together, then submit it with the online referral form. Making referrals jointly with the family helps us get a better understanding of the child or young person’s needs, and means we can process the referral as quickly as possible.
Referrals should be made only after a robust support plan has been put in place and reviewed for at least six months or two school terms.
What to do now
Download the relevant additional information document and follow the instructions on our page linked below.
Please note, you will not be able to submit the online referral form unless you have the completed and attached the additional information document.
The information will be reviewed, and a decision made about the best way to help the child or young person. Because of the number of referrals we receive, this can take some time and we please ask for your patience.
As soon as the review (known as triage) is complete, we'll reach out to share our decision with you. To help our team focus on reviewing all requests, we kindly ask that you refrain from calling the service for updates. Thank you for your understanding and patience.
Frequently asked questions
What about parents and carers that cannot access or use online systems?
Working in partnership with the school (or other involved professional) means that they can support the use of IT systems. Where there is no one available to support the young person, bespoke support can be provided by the service.
What if the school or professional is concerned, but the family is not?
Arrange to meet the parent/carer and explain your concern. Discuss with them how the school can support the child and what support is available to the family. Make sure an effective support plan is in place (this should be based on identified need and does not require referral/assessment/diagnosis). Arrange to meet regularly to evaluate the child's progress.
If you feel the child needs a specific provision or service that can ONLY be accessed with a specific diagnosis, please share this with the family.
The child/young person presents very differently at school and at home, what guidance can you offer?
This can often happen and it may be for a number of different reasons. A young person may work very hard to manage the school day, although this may not be apparent in the school setting. This may only be seen at home where the young person may, for example, have meltdowns or shutdowns. The effort to manage the school day can leave young people exhausted and with no energy or coping resources left by the time they get home. This can particularly affect young people who mask or camouflage, and work very hard to fit in.
While the distress may only be seen at home, the underlying triggers or reasons are often things that happen at school. It is very important to understand that, although a child may appear to cope at school, they may be feeling very stressed and distressed, even if they do not show this at school. Talking to the young person and their family will usually provide important information about sources of stress at school and ideas about what support can be put in place to reduce this.
What if the child or young person is on the school roll but is not currently attending due to anxiety or other needs?
If there is someone in school that knows the child or young person, we still ask them to work with the family as they will have important information including why the young person is not in the school setting. Where a child or young person is not known to school staff, then generally another professional who has direct knowledge of the young person will partner with the family.
Why do we need to wait six months before deciding whether a referral is needed?
Six months will give enough time to implement and evaluate a robust support plan based on the child or young person’s needs. Some children or young people may not need a formal assessment after this, as their needs will now have been met.
We ask you to work in partnership with the parents and carers. Information needs to be gathered by looking back over a minimum period of two terms or six months. This is so we can fully understand the child/young person’s needs, the strategies put in place and the impact these strategies have had. This is referred to as a ‘graduated response’ to meet a child/young person’s needs.
Will the requirements for a support plan put additional pressures on school staff?
The updates to the process are intended to reflect the graduated response and ordinarily available provision and what is already happening in schools. Our assumption is that where there are concerns that are significant enough to warrant referral for a specialist assessment, these will also be triggering a support plan in school.
All children and young people will need a fully completed form and supporting evidence before we can accept for assessment as it is the only way to gather the depth of information required. We cannot properly triage the referral and make decisions we have all the information required.
Will completing the additional information form create additional work for schools?
We would like to reassure you that the additional information forms have been designed to reduce the burden for those completing them when compared to the previous process. For example the combined autism and ADHD form replaces a total of 9 separate questionnaires previously sent out to families and schools. The forms have been designed to streamline the process, reduce duplication and the reliance on referrers providing a great deal of narrative text or description. Very similar additional information forms have been in place in Oxford for over a year and in Buckinghamshire for several months and are working well.
By making the forms available to download and asking for the form and support plan to be uploaded with the referral form, we are eliminating delays and issues with sending and receiving documentation that has held the process up for many families. We are already seeing that triage under the updated process is taking much less time to complete.
Can I give feedback on the process?
Yes, we will collect feedback from families and schools with every referral to help us evaluate, refine and improve the process. We want to make sure the system adapts to meet the needs of children and young people effectively.
What do we mean by a support plan?
This is the support in place that is above and beyond what would be typical to support a child/young person at this stage of development. A support plan is expected to include areas of need we would typically associate with possible autism and/or possible ADHD. For example for possible autism this would include needs with communication and social interaction, flexibility of thought and behaviour and sensory needs (three key areas of difference).
When completing a referral we ask for you to demonstrate that a ‘graduated response’ has been put in place for at least six months or two terms prior to referral. This includes any support that has been offered at home, in school or by other services involved. It can include strategies that parents have introduced at home as well as strategies recommended or put in place by professionals.
Why do we think a support plan is so important?
When we look at the process overall (in terms of referrals that are not accepted and referrals for children who do not go on to get a diagnosis) it is clear that there are children and young people whose needs can be met without referral for a specialist assessment. It is also very important that we do not add children to a long waiting list without knowing that they have support in place. For ADHD we have always asked that support is in place first (previously for 10 weeks) and a copy of the school support plan is provided.
What if the referral process isn't clear for some families or schools?
We are providing detailed guidance on our website and will be available to answer any questions. We encourage families and schools to spend some time on the website reviewing all of the information as this is likely to answer their questions. If not they can contact us for advice.
CYP Autism and ADHD triage team
CYPADHDandAutismTriage@berkshire.nhs.uk
0118 9046620
What support is available for schools?
There is a range of resources and free training to help schools with supporting children and young people. This includes:
- Psychological Perspectives in Education and Primary Care or PPEPCare Training: Flexible and free training for EYS/schools delivered by Berkshire Healthcare, with a total of 17 modules covering autism, ADHD and a wide range of common concerns and mental health difficulties
- NHSE info re Children and Young People including PINS: A national pilot coordinated by the Department for Education, Department of Health and Social Care, NHS England. Currently in primary schools in Reading, Bracknell, Royal Borough of Windsor and Maidenhead. The pilot will focus on early support and intervention for neurodivergent children in the mainstream primary setting. It will achieve this by bringing together health, the local parent carer forum, the local authority, and education staff to help shape whole school SEND provision, provide early interventions at a school level, upskill school staff, and support strengthening of partnerships between schools and parent carers.
- Belonging in School A guide to developing an inclusion policy for schools
- Person Centred profiling tool from Bracknell Forest
Helpful resources
Thinking about possible autism or ADHD
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